One of the most frustrating things about being disabled is that when doctors just plain ignore me. I’m not the type of person that goes to the doctor every week and complains of pain and asks for something. Far from it. I’m in constant pain ALL THE TIME, due to spastic Cerebral Palsy.
all my muscles are spastic (tight), and that they pull against each other all the time. One set of muscles that does this, and is causing problems are the muscles that hold the knee cap in place. My left knee cap is very off center and has been for awhile. It’s painful, and I’ve only found relief by getting cordozone shots directly into the knee.
Now if you don’t think THAT hurts, you’d be wrong. It does, but not for long… and it sure feels good afterward. But, I can’t watch. I’d be sure to pass out. Just thinking about the long needle going into the patella (knee cap) gives me the willies. And yes, you can feel it, even though the area is numbed before they do the procedure. It’s not painful after the initial injection of Novocaine to deaden the site. I just can’t watch them do it. I would probably pass out if I did. I’ve always been this way.
Anyway, the shots last anywhere from 4-6 months. The last time I had it done, my doctor told me he wouldn’t do it again, as it wasn’t curing anything… well, duh, the muscles aren’t going to loosen up on their own. I had told him I was going to the UW Center for Pain Relief, and he told me THEY could deal with it… well, I’ve contacted them, and they haven’t done anything. And this was two months ago, and it’s been over 6 months since I’ve had my knees shot up. I don’t have much problem with the right knee, it’s my left knee that I really need this for.
I have an appointment for the 18th of May, but the office where this is done is totally different, and if it’s not set up, it won’t get done that day, and the husband has taken the day off so he can take me up there (over 60 miles one way). I guess I will need to call them on Monday and see if my Pain Clinic doctor has gotten a referral written so I can get my knees injected.
I’m not holding my breath, though. For all that the facility name is “Center for Pain Relief”, the doctors sure don’t do much in that way. I am being weaned off my oral meds. First getting off the norco, then taking half the dosage of morphine and they wanted me totally off the morphine. I don’t think this is gonna happen. I’m not being unreasonable when I want to have the pain gone… they don’t seem to care about that… I did want to get off the narcotics due to side effects, but not at the expense of all the pain I’m in.
I’m about ready to tell them goodbye and just stick with my PCP (Primary Care Physician). I only decided to start seeing them is that my doctor moved to a practice that doesn’t do chronic pain meds, but most of his practice was that, so he moved into his own office. So, I don’t have to worry about that. My doctor even supplies me with the meds I normally would be taking, I just don’t take it unless the pain gets really bad.
I just can’t see myself just taking amitriptyline, especially because of my right shoulder. I’ve been a good girl and gotten off the Norco, but sitting here in pain… isn’t cutting it. I’m taking 1 morphine a day… nope, gonna go back on the Norco, I think. Or two morphine. I just haven’t decided what yet. I have Norco, but am running low on morphine. And those are narcotics, so you just can’t get a refill. Have to go see a doctor. Which is fine, if the husband would have a day off soon.
I think it would be better if my shoulder wasn’t killing me. If the shoulder was not injured, I’d probably be in a lot better shape, but with the way it is, forget it.