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WRHS 30 YR Class Reunion attended

Sunday, September 30th, 2012

I went to the White River High School 30 Yr Class Reunion last night. This entry is copied from the WRHS 30 YR HS Reunion Event on Facebook, and will be also posted on my wall.

Had a blast last night. It caused me to remember how much I really enjoyed HS and how different Elementary and Jr. High were for me. I was harassedddd and bullied (pushed into lockers, tacks in my chair, and the COMMENTS…) But, when I first got to White River, I was welcomed and greeted with no thought that I was disabled. You guys treated me like a PERSON.

Everyone treated me like there was no disability. I was judged on other things, and I was accepted into theatre, managing the volleyball team, and Key Club (among other things that escape my recollection at the moment. You guys didn’t care that I walked funny, or that I took longer to get places. I was Dana, not “that freak who walks funny” or worse yet, “that retard”.

I was asked to Homecoming, I was asked out on other dates. You guys treated me as an “equal”, ignoring the canes, crutches, and the slow walking. You didn’t think I was retarded or even better, disabled, didn’t treat me as such, and I’m so glad to count each and everyone of you as a friend. I was Dana, I just happened to walk funny and need help with some things and I would ask for that help. And it was freely given. Sometimes too freely, as I had to beat some of you guys off with a stick when it looked like I needed help when I actually didn’t.

That too, I remember, with special fondness, even if I groaned at the time, because I thought I could do anything and really didn’t need help. EVERYONE needs help at sometime in their lives, I just needed it a lot sooner.

If I couldn’t do something, solutions were found so I could participate. I fondly remember going to basketball games and cheering the Hornets on. Working on the Volleyball team as Manager and getting my Letterman’s Jacket (which I still have). Learning to drive and having the school buy hand controls so they could teach me. Then selling me the hand controls when the year ended. THAT was very cool when the Kiwanis club bought the controls for me after the semester.

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My computer is sick!

Thursday, July 5th, 2012

Using a free registry scanning utility, it found 520 registry errors. However, I am a registered user of ZoneAlarm, which has a utility to repair the registry, so instead of buying an unfamiliar product, I’ll using ZoneAlarm’s utility, and hopfully, fix all the crashes and other problems I’ve been having. With the large number of registry errors, it doesn’t surprise me, unless the utility was overstating, because it was one of those utilities that cleaned up x amount of errors and then you had to buy it… we’ll see what Zone Alarm says. Zone Alarm is primarily a Virus protection product. The registry repair is an added thing.

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NASA Shuttle Trainer Headed for Seattle!

Saturday, June 30th, 2012

When NASA retired the Space Shuttle fleet, they picked places for the shuttles to be shown. Seattle was in the bidding for one of the 4 shuttles, but didn’t make the cut, instead landing the Shuttle Trainer. People here lament the fact that we “lost”, but no, I think we won! The cities that will host actual shuttles, must display them away from the public (look but don’t touch), while WE, here in Seattle, will be able to climb into the shuttle trainer and play with it. It’s a mock up of a shuttle, built in the 1970’s, is made of plywood, but has all the systems that the shuttle used, for astronaut training. The only thing the trainer doesn’t have, are the wings.

This weekend, the nose and crew compartment are being flown to Seattle via NASA’s ‘Super Guppy’. Then only 3 more parts are needed to be shipped (the cargo bay and the stand for same). Then they will put it together, and it’ll go into a new gallery at the Museum of Flight.

Like I said above, I think Seattle got the best part of the picks. No, we didn’t land an actual shuttle, we landed something far better.

See the move from NASA to the airport and the trainer being loaded onto the Super Guppy. Shuttle Trainer Coming to Seattle

Amazon Kindle 3 needs a new home!

Wednesday, June 27th, 2012

I recently purchased a Kindle Fire, so I find that my Amazon Kindle 3 needs a new home. If anyone reading this blog would like to give it a new home, please contact me at danawheels@gmail.com. It comes with a cover and I will throw in 2 of the charging/data cables. As for the USB to outlet attachment, that will be needed to be bought separately, as I don’t have one for the Kindle. They run $9.95 I think. You can still charge the Kindle via the USB port on your computer, however.

Lots of pain today…

Wednesday, June 27th, 2012

Mostly it’s lower back pain, but still, it’s tiring. And yes, I’ve been taking my meds faithfully. I think that my back just isn’t up to all the sitting I do. I’m in a wheelchair, and that’s all I do. It hurts less when I’m in my wheelchair, however, probably due to the hard back and specialized cushion on the seat. My wheelchair is customized for long sitting streatches as well as other things. It cost a pretty penny too. $23K or so I was told by the company where I bought it. The base chair is only $4K, but with all the modifications where the footrests raise and lower as well as the seat, that adds up, plus Durable Medical Equipment (DME) is notoriously expensive. But, I knew I was needing a new wheelchair, so I joined a high end insurance company and paid $350 a month, before I got the wheelchair and they paid 100% of it.

I will probably have to go back to a high end insurance company next year during open enrollment (I’m on straight Medicare right now), because I have some expenses when I get the intrathecal drug pump refilled that we’re having to pay out of pocket that are a little extreme. $300 or so… The refills cost about $8k each, and I have to pay 20%, so I’m having to be a bit more budget conscious since I wasn’t able to get in with a insurance company at the beginning of the year. The one that I chose, didn’t take my doctor, so I got dumped into regular Medicare. I’ll be switching on January 1st, that’s for sure. Hopefully, I’ll find one with minimal premiums, thanks to Obamacare.

Washington State’s new Pain Medication Law

Saturday, June 23rd, 2012

Washington State passed a law to curtail the rampant overuse of opioid drugs to control chronic pain. Good in theory, not so good in execution. The theory, was to control the doctors that are overprescribing such drugs as Morphine and OxyContin. Doctors were writing prescriptions left and right for these drugs to people that were on workers compensation for injuries. And this is the right thing to do…. but then there are the people that have a disability that causes pain, chronic pain. And to function, they need something to allieveate that pain. Me, I would rather take the minimum amount of pain medication that I can, and still remain functional. I do take a bit more than the minimum… I do not over-medicate, but I also don’t ‘grin and bear it’. I medicate so that I my pain is managed to a great extent. Say 80-95% of it… If I don’t do anything unusual, I can function very well, and do not feel any pain at all, as long as I take pain medication on a schedule of every 12 hours.

However, my doctor has thrown me a curve ball, he wants me to start walking. I STOPPED walking because of two specific things. It hurt, and it cost me a lot of energy. Imagine yourself (if you’re a non-PWD), walking on a tightrope stretched between two buildings. I use up THAT much energy when I walk the same distance. So if I were to talk a block, it would be like someone not disabled walking a block on a tightrope stretched between two buildings. Once I use that analogy, most people look at me and say that they totally understand why I use a wheelchair. I’d be in bed all the time otherwise, and exhausted. I wanted a life, so I stopped walking 27 years ago, except for my wedding, 20 years ago.

Been Kinda busy…

Thursday, June 14th, 2012

I’ve been kind of busy these last few weeks. I had to replace my Kindle fire due to a faulty USB port… what a major PITA. I’ve also been getting ready to clean my house. It’s a major mess and Keith (the husband) has next week off because of our anniversary and I want to do a major dent in cleaning the house before guests arrive in September.

I also need to find my smartphone. It disappeared and I don’t know where it is. I had thought I’d dropped it right here at my computer, but it wasn’t under the desk, or around the computer, so the next place to look is under the headboard and bed. The replacement phone I’m using is running Android 1.5 and I really really want my Motorola Droid that can run all the most current stuff. I have programs that I own, that I can’t use right now. And I only have one battery for this older smartphone… I have three for my Droid. The phone is dead right now, so calling it to find it isn’t an option, but I know it’s in the house, SOMEWHERE. We’ll find it next week. That will be so nice, to have a CURRENT smartphone, instead of one that was out of date almost efore I bought it 2 or 3 years ago. I’ve been with Verizon forever, and upgraded from a regular phone to a smartphone (with a contract), and our contract at the end of June. Don’t know what we’re going to do then, but I hope we stay with Verizon… if not, I’ll have to haunt Ebay for a new phone as we find a new cell carrier.

TSA needs to modify their policies for the disabled!

Saturday, April 28th, 2012

A friend sent me a link to a newspaper article http://washington.cbslocal.com/2012/04/25/family-misses-flight-after-tsa-gives-pat-down-to-girl-with-cerebral-palsy/

because he knew I’d get upset… he had no idea.

The article states that a family, which included a young child with Cerebral Palsy, and is developmentally delayed, was flying to Disney World from Washington DC. The child, because she wears bilateral AFOs and uses forearm crutches, has to be go through a modified pat-down, and can’t go through the scanners. She is frightened by this, and the mother explained this to TSA and asked them to introduce themselves to the child. They didn’t do this, they just treating her aggressively. She became frightened. The agents started yelling at the girl and demanding that she be patted down and it frightened her even more.

A supervisor finally inspected her crutches and passed her through, but other agents followed the family and demanded that she go through a full inspection, and the family ultimately missed their flight.

The TSA reviewed the complaints after the incident and found that the agents behaved appropriately, in doing a modified pat-down on the child.

HUH? A supervisor clears her, and other agents chase down the family and frighten a disabled child, and it’s OKAY? Something isn’t right when one hand isn’t talking to the other hand.

I don’t fault TSA in doing security checks on everyone that gets on an airplane, I do not believe in the philosophy that just because you are disabled you should get a ‘free pass’, to the inspections, but the way the agents handled this could have been done in a much better manner. Sure, they had to do a pat-down on the girl, but they could have introduced themselves and explained what they were doing, instead of acting all aggressive and like thugs.

I would be seriously upset if I were just waved through security at the airport. ANYONE can be used to carry a bomb or gun or whatever through Security, but children can be handled in ways that make it so they aren’t frightened by the procedures. TSA needs new training and policies for children and especially disabled children.